Trust in the machine: Data, surveillance and public health - Content developed by NAPHWA, session supported by Gilead
| Monday, November 16, 2020 |
| 2:00 PM - 3:30 PM |
Overview
Increasing amounts of our personal health information is being recorded, collected and shared by government agencies and private organisations. Should people with HIV and other priority populations trust government assurances of a digital utopia in which we may achieve unprecedented gains in individual and population health? Or are we right to be concerned that our health information will be used to continue the long history of surveillance, over-policing and criminalisation of our communities by the State? Is the end of privacy inevitable or can we do something to avoid its worst effects? Four esteemed panellists will tackle these questions and more.
Speaker
Ms Lizzie O'Shea
Lawyer, Writer, Broadcaster And Founder Of Digital Rights Watch
Digital Rights Watch
Lizzie will share her insights about the ever-increasing amounts of our data that are being shared and what we can do to ensure we get a share of the benefits, while mitigating the harms.
Biography
Dr Anthony Smith
Research Associate
Centre for Social Research In Health, UNSW Sydney
Social researchers Christy Newman and Anthony K J Smith will speak about the findings of their recently published study Understanding trust in digital health among communities affected by BBVs and STIs in Australia
Biography
Prof Christy Newman
Professor
Centre for Social Research in Health, UNSW Sydney
Social researchers Christy Newman and Anthony K J Smith will speak about the findings of their recently published study Understanding trust in digital health among communities affected by BBVs and STIs in Australia
Biography
Mr Paul Kidd
Community Lawyer
Fitzroy Legal Service Inc.
Paul Kidd will present on the surveillance of people with HIV for health reasons and what happens when this intersects with the criminal law
Biography
Mr Rhys Evans
Solicitor
The HIV/AIDS Legal Centre (halc)
Positive Life NSW and the HIV/AIDS Legal Centre along with NAPWHA and Scarlet Alliance recently made submissions to Australian government’s consultation on the proposed Data Availability and Transparency Bill (2020). Rhys Evans will analyse what this means for data sharing and if (and for how much longer) the Privacy Act 1988 can offer any protections.
Biography
Chair
Aaron Cogle
Director
National Association of People With HIV Australia (NAPWHA)
Speaker
Rhys Evans
Solicitor
The HIV/AIDS Legal Centre (halc)
Paul Kidd
Community Lawyer
Fitzroy Legal Service Inc.
Christy Newman
Professor
Centre for Social Research in Health, UNSW Sydney
Lizzie O'Shea
Lawyer, Writer, Broadcaster And Founder Of Digital Rights Watch
Digital Rights Watch
Anthony Smith
Research Associate
Centre for Social Research In Health, UNSW Sydney
Support Staff
Brooke McClune
Touchpoint
Linda Starke
Event Coordinator
ASHM
